Showing posts with label PTSD Caregivers. Show all posts
Showing posts with label PTSD Caregivers. Show all posts

March 31, 2013

I Have a Partner Not a Caregiver: I Would Be Lost Without Her But I Don't Want Her to Become My Nurse


This is the QB armband I wear to help me remember chores.
The last thing I would ever want to be guilty of is calling for a ubiquitous model for the household division of labor, but the breadwinner family model doesn't always match my values. When I left the Army I never cited PTSD, but I did cite the inflexibility of the Army's career track for officers. Specifically the common process of moving every three years made it impossible for me to support my spouse's career ambitions. Despite the fact that my first wife left me while I was hospitalized for PTSD and mTBI, I am still grateful that this decision has ultimately let me support my wife's career.

Despite my best ambitions I am terrible at doing my share of the household chores. I think that this is common amongst veterans. Terms like caregivers have arrived primarily because some injuries are so severe that they do require full time support, but also because PTSD makes it hard value non life threatening phenomenon. Let's face it, after war most of our brain power is used to analyze perceived threats. Doing the laundry on time is hard when we constantly feel threatened.

But we have learned to never to make excuses and this was the very reason I left the Army. I have always wanted to support my partner's career as much as my own. A breadwinner model family may work for most veteran caregiver relationships, but this does not always recognize how our country's values have changed to provide equal career opportunities for each sex. More importantly, I prioritize values and this is an area in which I am falling short of my own expectations.

Like many mTBI sufferers I often find myself in a room with no idea why I am there or on the trail alone with no idea how long I have been there. I have come to realize that my memory is only reliable when I consistently pattern my behavior and have constant reminders. Specifically, I have had the most success by replicating the way I inspected equipment prior to combat. My mind's focus on threats still recognized this need and the behaviors I designed after suffering from mTBI work well. I have tried cell phone alarms, an iPad calendar, chalk boards, a PDA etc., but none worked in long term. I think it is because my battlefield mind doesn't focus on those that I never used in combat.

Recently, I have gained a better awareness of my memory lapses. My watch broke and I temporarily borrowed my wife's. While it had the date, it did not have the day of the week on it. Sometimes I used my phone, but more often I would simply forget what day it was. I missed numerous appointments until I got a new watch. I was still forgetting household duties because I had a written schedule that wasn't readily available. Keeping my syllabi open on my desktop prevented schedule mistakes with my course, but this did little to help outside of the classroom.

My ROTC Cheat sheets helped me with memory.

Like the difficulties I have grasping my own identity and my forearm tattoos, I realized that I always kept important tasks and grids on my non-firing forearm with my watch. Any graduate of Ranger school knows how to constantly check their watch, no matter the stressor, so they can get off the objective before artillery is called on your position. I began to realize that I constantly lose track of tasks because I am startled, but no matter what I checked my watch. If I used the same quarterback style armband that I did on raids (I actually rested my map there most often), then I might do a better job keeping up with my chores.

I don't know how this going to work, and I was reluctant to embrace method because it would visible to everyone. However, I have done more permanent things to my body to fight for other aspects of my identity. Being a supportive husband is also a vital aspect of my identity, and I have begun to realize that I need to do whatever it takes. For me it is more important to have a partnership with my wife than have someone who cares for all of my needs. I may not be able to keep up with her all the time, but it is important to me that I do all I can. If I can write this blog and display my life bare before this audience, then I can wear something on my wrist that might be a little embarrassing.  If I want to be great partnership, then I have to employ the same strategies, with the same vigor, that I do to define who I am or use to support my comrades in arms.

The home cannot be a front we leave closed simply because it is harder to care about washing the dishes when you've held human viscera in your hands. Our partners can be so important to our well being and we should not concede this ground even when they are rushing forward to care for our needs and support us however they can. Most importantly, we can't let our spouse become our nurse at the expense of intimacy, romance and spontaneity. I personally value the deeper connections that are made in a partnership more than I could benefit from any treatment regime, and I am hesitant to ever yield the title of wife/partner. Some veterans will never be able to contribute to their household chores and I am lucky to contribute: it is a privilege I should appreciate rather than abandon just because it has become difficult to make it a priority. Growth doesn't make a lot of highlight reels or montages in action movies, but the way we manage our homes is vital to our relationships. It is not the stuff of movies, but is the substance of a healthy relationship. In a pragmatic sense, my relationship with my wife is what kept me going when things started getting dark, and all I could think about was suicide. Though it requires work and daily effort to support her, the payoff is significant for both of us. More importantly, making my wife happy makes me feel good and real achievement is measured in how you treat your family, not medals, scare badges, plaques, number of combat missions, etc. Mission focus can never make us forget that we have no greater mission than supporting our loved ones whatever family model reflects our values.

June 9, 2011

Caregivers Need to Learn the Signs of Burnout and Secondary PTSD

You are not alone; welcome home to our veteran’s means something more profound then setting foot back on our homeland. For the combat veteran returning from war does not mean it’s a done deal; coming home. I tell a veteran welcome home to honor their continued sacrifice; the visions of war will never leave us and sometimes they swim in a deluge that reigns.

Add to your PTSD Toolbox
The panic attacks you are receiving are an attunement to the survival instinctual part of us; you have been programmed to react rather than rationalize in the moment. The deluge is the snapping in and out of reality; flashbacks, hallucinations, delusional thinking, the extreme dissociative features of Combat PTSD. The symptomology for chronic combat PTSD or Complex PTSD (CPTSD) has many similarities to Dissociative Identity Disorder (DID).

Switching of personalities to suit the situation, thus the veteran will exhibit extreme characteristics not otherwise in line with "person we knew before war" (Dissociation of the Personality in Complex Trauma-Related Disorders and EMDR: Theoretical Considerations, p. 81-82). In combat we must compartmentalize our spirit or soul, our happiness, compassion, empathy and our humanity. We must demonize our enemy so that we may kill them. Later, coming to terms with taking lives, we trip over our Combat Values Structure; which does not fit in the civilian world. So, we make our home the war zone. Because, believe it or not. We know how to survive in here, outside those doors is a foreign world trying to invade. That's the world you live in now; I see you. You do not have to be ruled by it anymore. You can learn to take care of your veteran AFTER you take care of yourself first!

Go to a retreat for family members, such as When War Comes Home Retreat. There is a way out from under the oppressive emotions that chain us to our past; we survived not because we are weak. God put you on this path. What are you going to do with it?

Go to FamilyofaVet.com to learn more about the symptoms and signs of Secondary PTSD. Family of a Vet and Combat PTSD Blogger are partnering to bring together local resources that may not be available in your area; we aim to become that resource. If you would like to help click the link below and join us.
http://www.familyofavet.com/grassroots_team.html

November 8, 2010

VA Celebrates National Family Caregiver Month

WASHINGTON (Nov. 8, 2010)- The Department of Veterans Affairs (VA) is marking National Family Caregiver Month by honoring the service of family members and friends who have dedicated their lives to caring for chronically ill, injured, or disabled Veterans.

"Caregivers are the family members and loved ones who take care of the severely injured Veterans who need assistance on a daily basis," said VA Secretary Eric K. Shinseki. "These mothers, wives, fathers, husbands and other loved ones make tremendous sacrifices to be there every day for the Veterans who served this Nation. They are our partners in Veteran health care and they deserve our support."

November is National Family Caregivers Month, and VA medical centers nationwide will offer locally sponsored events for caregivers. Because caregivers often experience stress, burnout, or feel overwhelmed by the caregiving experience, planned activities will provide useful information about VA and community resources that offer support and assistance to caregivers and Veterans.

Caregivers provide a valuable service to Veterans by assisting them beyond the walls of VA medical facilities with support such as accessing the health care system, providing emotional and physical support, and allowing injured Veterans to stay in their homes rather than living their lives in an institutional setting.

Caregivers help Veterans maintain a better quality of life and gain more independence. As the Veteran population ages and continues to increase, the role of caregivers as partners in supporting Veterans is even more prevalent. The Veteran population aged 65 and older is expected to increase from 37.4 percent to 44.8 percent by the year 2020. VA is also treating a new era of younger, severely injured Servicemembers. Many Veterans from Iraq and Afghanistan will need lifetime care. VA recognizes the support of their caregivers is vital for these Veterans.

On May 5, 2010, President Obama signed into law the Caregivers and Veterans Omnibus Health Services Act of 2010. Passed by Congress, this law will allow VA to care for those who provide supplemental help to family caregivers of the most severely wounded veterans returning from Iraq and Afghanistan. VA has been consulting with Veterans organizations, as well as individual Veterans and their family members, to ensure these new programs are implemented to provide the best possible support for those who have sacrificed so much.

These benefits will add to the wide range of compassionate and practical programs for Veteran caregivers that are already available from VA:
  • In-Home and Community Based Care: This includes skilled home health care, homemaker home health aide services, community adult day health care and home based primary care.
  • Respite care: Designed to temporarily relieve the family caregiver from caring for a chronically ill, injured or disabled Veteran at home, respite services can include in-home care, a short stay in a VA community living center or other institutional setting or adult day health care.
  • Caregiver education and training programs: VA provides multiple training opportunities which include pre-discharge care instruction and specialized caregiver programs such as polytrauma and traumatic brain injury, spinal cord injury/disorders, and blind rehabilitation. VA has a caregiver assistance healthy living center Web page on My HealtheVet, www.myhealth.va.gov, as well as caregiver information on the VA's main Web page health site; both Websites include information on VA and community resources and caregiver health and wellness.
  • Family support services: These support services can be face to face or on the telephone. They include family counseling, spiritual and pastoral care. Polytrauma Centers also offer family leisure and recreational activities and temporary lodging in Fisher Houses
  • Other benefits: VA provides durable medical equipment and prosthetic and sensory aides to improve function, financial assistance with home modification to improve access and mobility, and transportation assistance for some Veterans to and from medical appointments.
Caregivers should contact their nearest VA medical center for caregiver activities in the local area. Facility locators and contact information can be found at www.va.gov.